tag:blogger.com,1999:blog-18996592.post115288203041131204..comments2023-11-05T07:07:20.561-05:00Comments on SwedeHart Stories II: FrustratedJessicahttp://www.blogger.com/profile/16995715937190959162noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-18996592.post-13235793224941444982007-09-17T02:24:00.000-04:002007-09-17T02:24:00.000-04:00Dear Jess, A friend gave me your link. I have rea...Dear Jess, <BR/><BR/>A friend gave me your link. I have read your entire post with the history of this jaw problem.<BR/><BR/>There is no doubt in my mind that you have acute/chronic osteomyelitis of the mandible. It means your mandible bone is infected, and to the bone marrow since it is causing systemic illness - low grade fever, lymph node swelling, localized swelling, etc.<BR/><BR/>This small corner of the intersection of medicine and dentistry is completely MESSED UP. If you or anyone, were to get an infection like this - same exact symptoms, in any other bone in your body - you would be treated COMPLETELY DIFFERENTLY. An infectious disease dr. would put you on IV antibiotics, and depending on the extent of the infection - keep you on them for 2 months - sometimes more.<BR/>The problem with bone infection in the jaw, and most other bones, is that it doesn't show up on an x=ray until there is EXTENSIVE bone death FROM THE infection.<BR/><BR/>If you were on clinda. for 5 weeks before you got the bone scan, this absolutely would effect the accuracy of it. My guess is that your jaw area would have lit up as well.<BR/>an orthopedic surgeon would perform surgery as soon as he/she did a proper work up.<BR/><BR/><BR/><BR/>I am in remission from a jaw infection. I know tons about this problem and where to get some help. Please feel free to email me;<BR/><BR/>theresahb@hotmail.comscrumptchhttps://www.blogger.com/profile/09890940064835085797noreply@blogger.comtag:blogger.com,1999:blog-18996592.post-2086911120148999252007-05-05T10:03:00.000-04:002007-05-05T10:03:00.000-04:00hi jess,r u feeling any better?i feel for u from m...hi jess,r u feeling any better?i feel for u from my heart because i am going through the exact same thing for 9 months i swear,i am severely depressed from all this pain that i have been living with,i have 2 little girls and i am getting to the point were i cant handle any more pain.my problems started j severe left side shoulder pain it was so severe for like 20 minutes than the next day i had a severe throat infection the doctor put me on antibiotics it got a little better but when i finished my antibiotics the throat infection started again and again and again i have been also suffering from constant left sided jaw, neck ,shoulder, chest, arm and breast pain i swear to god it is constant and i don't know what to do anymore,i have seen heaps of doctors had ct scan of head ,neck area, mri head,neck area,they checked my heart,had chest x ray had ultrasound for the swollen gland in my left neck went to a neurologist,been to the dentist for check up and x rays ect...but nobody has a answer to my pain i am sure that something is wrong because noway i would be suffering this much pain constantly if there were nothing wrong with me right? anyways now i am going to get a ultrasound for my left breast since my left breast is hurting badly too now,i am also going to a ent ear nose throat specalist next weak for my constant throat pain, i'm so scared because i know something is wrong in my body but at the same time i'm sick of this pain i would rather find out what is going on and try to enjoy the rest of my life pain free,please somebody help me if u have any idea what is causing my pain let me know im desperate for an answer pleaseeeee,and jess plz write back to me i want to know how u r doing like i said i feel for u so badly it sucks to live with pain and to keep thinking am i dying? is something spreading in my body? and to get no answers from anyone,sorry for my long comment i know this is supposed to be about jess but because we are going through the same situation i might be help to her or she might be help to me ,jess plz write back to me and let me know whats happening with u i wish u all the best god be with u.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-18996592.post-1154147081218207692006-07-29T00:24:00.000-04:002006-07-29T00:24:00.000-04:00Yes,Please do seek other opinions.You are a unique...Yes,<BR/><BR/>Please do seek other opinions.<BR/><BR/>You are a unique and wonderful creature....<BR/><BR/>Do not depart early.<BR/><BR/><BR/><BR/>Neils<BR/>11:19 pm<BR/>07/28/2006Anonymoushttps://www.blogger.com/profile/13441809988487585009noreply@blogger.comtag:blogger.com,1999:blog-18996592.post-1152934765682730172006-07-14T23:39:00.000-04:002006-07-14T23:39:00.000-04:00There have got to be other oral surgeons that woul...There have <B>got</B> to be other oral surgeons that would see you eventhough your surgeries were done by another doctor. <BR/><BR/>I'm with Bud and Pax, either go to HUP or Jefferson, or if you want to go to a really top-tier hospital that isn't as far as Mayo Clinic, check out Johns Hopkins, they're at the top of all the lists and just a relatively short drive down I-95. <BR/><BR/>Seems to me you've been more than patient, and it sounds like your surgeon is just trying to shut you up, rather than address your problems. I'm not a huge fan of legal action, but it might soon be time for an inquiry from an attorney.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-18996592.post-1152932619186606102006-07-14T23:03:00.000-04:002006-07-14T23:03:00.000-04:00good grief I hope that you get some help somewhere...good grief I hope that you get some help somewhere. I know from having a heart attack that it is no fun to not know what is causing the problem. Ill keep you in my thoughts and prayers. <BR/><BR/>jeremyAnonymoushttps://www.blogger.com/profile/13441809988487585009noreply@blogger.comtag:blogger.com,1999:blog-18996592.post-1152898625240116822006-07-14T13:37:00.000-04:002006-07-14T13:37:00.000-04:00Sorry about all of this...I think I might have men...Sorry about all of this...I think I might have mentioned that for the past few years I had a ton of dental work done, and at one point I had a recurring infection. Eventually they gave me a series of IV antibiotics and that did the trick.<BR/><BR/>Good luck and like Bud said, contact the U of Penn or one of the teaching hospitals near by.<BR/><BR/>Of course, you know how this will play out don't you? One morning you'll wake up and the pain will be gone and the whole thing will just be an unhappy memory.<BR/><BR/>Good luck, hang tough and SCREAM for an IV.Anonymoushttps://www.blogger.com/profile/13441809988487585009noreply@blogger.comtag:blogger.com,1999:blog-18996592.post-1152895586628518032006-07-14T12:46:00.000-04:002006-07-14T12:46:00.000-04:00Jess, there is also the U of Penn. Not too shabby ...Jess, there is also the U of Penn. Not too shabby a place. You're getting a runaround and it sucks. I want you to feel better.Anonymoushttps://www.blogger.com/profile/13441809988487585009noreply@blogger.comtag:blogger.com,1999:blog-18996592.post-1152885632107280322006-07-14T10:00:00.000-04:002006-07-14T10:00:00.000-04:00Jess, go to Mayo Clinic. You need to be treated ho...Jess, go to Mayo Clinic. You need to be treated holistically. Each doctor works together there...if you go to individuals they treat what they know...and don't look beyond it. Your insurance will pay...you need this.<BR/><BR/>Here's the link: <A HREF="http://www.mayoclinic.org/" REL="nofollow">Mayo Clinic</A>.<BR/><BR/>I hope you get well soon. Do look into Mayo (or a research hosptial like it that looks at the whole patient). You can't keep going like this. Obviously something is very wrong. Sorry to hear it.<BR/><BR/>FrankAnonymousnoreply@blogger.com